About

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I am a truly grateful girl.  For 4 decades + I have been a patient navigating life with Severe Combined Immunodeficiency secondary to Adenosine Deaminase Deficiency (SCID-ADA) and several other serious health conditions.  I am a wife, mum of 3 corgis and a cat, balancing an insatiable zest for adventure and the realities of living with chronic illness.  Sharing my experiences as a patient and life explorer, not always doing it “just exactly perfect” but learning and growing with each and every opportunity.  Thank you for stopping by!